Kampala – Autism Spectrum Disorder (ASD) is a complex developmental state that affects millions of children around the world. Characterized by challenges in communication, social interaction, and sensory processing, autism is a spectral disorder, meaning that it manifests differently in each individual. Some children with autism struggle with verbal communication, while others show extraordinary ability to problem-solve, creativity and pay attention to detail. Despite their potential, children with autism often face major barriers to education, healthcare and social inclusion.
The prevalence of autism spectrum disorder (ASD) in Uganda is estimated to shock approximately 88 people per 10,000 people.
In Uganda, initiatives such as Teens and Tots Neuro Development Foundation and MTN Changemakers are making tireless efforts to break these barriers. By providing resources, vocational training and advocacy, they create a more inclusive society where autistic children can thrive.
For parents of children with autism, travel often has challenges. Margret Ngabo The mother of a 22-year-old autistic son knows this well. “When my son was two years old, I realized he wasn’t talking like any other child,” she recalls.
“I took him to the doctor, when I learned he had autism. It was a difficult diagnosis to accept, but it was the beginning of a long journey to find the right support for him.”
The Ngabo experience is not unique. Many parents face stigma, misinformation, and lack of understanding from their communities.
“People don’t understand autism,” she explains. “When I took my son to a mainstream school, they didn’t know how to handle him so they drove him away. It was heartbreaking.”
Stigma surrounding autism often leads to isolation of both children and their families. In some cases, parents are blamed for their child’s condition, with accusations ranging from curses to magic.
“Society needs to recognize autism and be able to change our mindset. We need acceptance and inclusion so that these children can integrate into society,” stresses Ngabo.
One of the most effective ways to empower children with autism is through vocational training and skill development. At teens and tots, children are taught practical skills such as sewing, painting, baking and crafting. These activities not only provide a sense of accomplishment, but also equip children with the tools they need to live a semi-independent life.
“When my son first came to Tots with his teens, he couldn’t do much on his own,” Ngabo shares.
“But now he can make doormats, use sewing machines, cook and bake them. These skills give him a sense of purpose and hope for the future.”
The MTN Foundation has played an important role in supporting these initiatives. Through the Changemaker program, MTN has donated industrial sewing machines, baking equipment, digital devices and soap making supplies to teens and TOTS.
The move is part of the MTN Foundation’s Changemaker initiative, providing funding and resources to grassroots organizations working in areas such as economic empowerment, education and healthcare.
“These are more than just items,” says Sylvia Mulinge, CEO of MTN Uganda.
“They are opportunities for these kids to learn, create and thrive.”
Mulinge also reaffirmed that through the MTN Changemakers initiative, MTN Uganda has supported 25 projects with an investment of 500 million Shs this year, and that support of the same size of last year is forcing dreamers to turn their vision into meaningful community transformation.
The MTN Foundation Changemakers initiative, launched two years ago, already supports multiple projects, including Bless a Child Foundation’s pediatric cancer care, Smiles Foundation’s 40-day education program for over 40 days, and vocational training at the hands of the Hope Skilling Center.
More initiatives are being planned, including the Karangara House for Children with Special Needs, the Bussini Carpenter Project, and the Lila and Soloti Water Access Project.
Last year, MTN Uganda invested 500 million yen in 25 community projects across the country through the MTN Foundation, in line with its Ambition 2025 strategy to promote digital and financial inclusion while promoting long-term social impact.
Sarah Kisitu, co-founder of Teens and Tots, thanked MTN, saying that the material not only enhances children’s learning, but also provides a source of income for some of the underprivileged mothers in the community.
“This contribution gives families the opportunity to become more independent. Many of them struggle to achieve their goals, and these skills provide new pathways to financial stability,” she said.
Kishitu says early intervention is important for children with autism. Research shows that the more support a child receives, the more likely they are to develop communication, social and life skills.
“In teens and Tots, three-year-olds are enrolled in treatment and education programs. There are significant progress in students,” he says.
“Some of them couldn’t speak when they first came here, but now they can communicate and even perform on stage. Early intervention makes all the difference.
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Despite progress, there remains a major barrier to inclusion. Many families cannot afford to pay the costs of professional care and public support is limited.
“For real progress to occur, everyone must have access to opportunities to improve their lives. This initiative is to empower families with practical skills that will generate income and help them build a sustainable future,” Mulinge said.
For parents like Ngabo, the future is full of hope. “My son wants to accept and appreciate who he is,” she says. “I want him to have the opportunity to contribute to society and live a fulfilling life.”
Through the efforts of organizations such as teens and Tots and initiatives like the MTN Changemaker, this vision is becoming a reality. By empowering children with autism and creating an inclusive community, all children can ensure the opportunity to reach their full potential.
Founded in 2012, Teens and Tots Neuro Development Center offers specialized education, treatment and vocational training for children with special needs. The new equipment expands the center’s capabilities, providing tailoring, baking, digital literacy, and craft craft training, helping over 500 caregivers and young people develop skills for employment and entrepreneurship.
